Dementia Support Line
Real-life examples of measuring experience
Read case studies across our four key areas: Developing new services, Supporting inclusion, Becoming dementia-friendly and Strategy and evaluation.
Developing new dementia services
Read some examples of organisations that have used research to inform integration of services, so they can enable people to live better for longer in the community.
Supporting inclusion for people with dementia
Read about solutions to improve experiences and outcomes for diverse populations, and how these solutions were informed by research with people who have dementia.
Incontinence can stop people getting involved in the community. This project was about helping people to have a say in how their continence needs are met.
As video calls and virtual meetings started to become part of daily life, our group agreed to try out free video conferencing once a month, in between the in-person meetings.
The low cost, easy to use technology successfully connected people with dementia, so they can be actively involved together in community life, across England, Wales and Northern Ireland.
Becoming dementia-friendly
Read about different ways organisations can become dementia-friendly, including assessments, adjustments, inclusive design and professional development. This section covers GP practices, hospitals, hospices, care homes and more.
iSPACE was a quality improvement and innovation programme that aimed to better manage the pathway of patients with dementia and their carers through primary care by:
The assessment and benchmarking tool was introduced as a systematic way to measure improvement, complementing the original iSPACE work.
The experience of patients with dementia has informed a ward transformation in Shrewsbury and Telford Hospital. This led to changes that help patients to be safe and well.
An innovation project about sex and intimacy in care homes led by Alzheimer's Society.
Entering a care home often involves focusing primarily on an individual’s clinical and personal care needs. This focus can mean that other important but less visible needs are overlooked. These may include needs relating to sex and intimacy, such as holding hands, cuddling or sharing a bed with a partner, which can consequently remain unmet.
Read the project summary
Strategy and evaluation of people with dementia
Read some examples of people with dementia helping to improvements across different organisations around the UK, including Councils and Commissioning Groups.
A new model for supporting people with dementia, with the role of Dementia Companion at its heart. This role is a new way to help people with dementia and their carers have a more positive experience of living with dementia, and to make the later stages of the journey less distressing
Essex County Council commissioned Healthwatch Essex to speak to people with dementia. The purpose of the conversations was to find out what it's like to live with dementia in Essex.
They also produced a useful report.
Making Evaluation Count involves seeking feedback from people living with dementia and carers about the Alzheimer's Society services they receive from our support workers.
Exploring the use of observational methods with people in the late stages of dementia in day care and support services provided by Alzheimer's Society.
Dementia-friendly templates: examples and tips
Tips and templates for producing dementia-friendly documents, that you can use when gathering feedback from people who have dementia.
Aim: to create a new Dementia Pathway across the area, working collaboratively with whole system and keeping people affected by dementia at the centre of the process.
Over 100 people were involved in activities based around the NHS Well Pathway for Dementia and the Dementia Statements.
Read the project summary
Alzheimer's Society introduces Dementia Connect through 'Early Adopter' sites, to help learn and improve how it worked, ahead of rolling it out across England, Wales and Northern Ireland.
Read the project summary
This project in Essex gave personalised care to local people, helping to improve the experiences of people with dementia.
Read the project summary
The Live Well with dementia programme was initiated to fill a gap in Alzheimer's Society services, of a structured, peer group programme that is based on self-management principles for people living with dementia.
Read the project summary
Aim: to provide well-evidenced insights into the experiences of carers, healthcare professionals and people with dementia during their dementia diagnosis journey.
Read the project summary